Part IV: Recommendations

    How to Reduce Risks, Ensure Equity, and Protect Student Privacy when Implementing Self-Harm Monitoring Programs

    As schools and districts attempt to protect students amid the strains of the pandemic on student well-being, education stakeholders should remember that privacy protections can enhance mental health support programs by encouraging students to feel they can safely ask adults for help because they know that the information shared will remain confidential.

    Before adopting monitoring technology, schools and districts should understand key facts about how the technology works, how its implementation may impact students with mental health needs or disabilities, and how to prioritize student privacy within their programs.

    To foster a healthy school environment that strives to ensure students’ mental well-being, schools must ensure that students and their communities support using monitoring systems for this purpose and are aware of how the program affects them and their associated rights. To create self-harm monitoring programs with those protections, schools and districts can take the following steps:

    • Develop a firm understanding of community values surrounding mental health, self-harm, and monitoring by creating a dialogue with the school community prior to adopting any monitoring program. If a monitoring system has already been adopted without seeking input from students and families, school leaders should begin to convene regular opportunities for student and family feedback on the district’s monitoring policies, solicit community input on a regular basis as they periodically review the monitoring policy, and incorporate this input in periodic updates to the policy. If students and families are not aware of how and why they are being monitored, self-harm monitoring will feel like an administrative overstep and breach of trust. Students and families will be most affected by any self-harm monitoring program and should accordingly be centered and involved in developing their school district’s monitoring plans and processes. Efforts to include the school community will help build trust, support, and transparency. This will ultimately increase student well-being and safety.
    • Create trust among students and families by providing transparency about monitoring programs and practices. When considering online monitoring programs, schools should clearly define and communicate which information and activities the programs will track and why, who will have access to the information collected, how that information will be used, and how long it will be stored.
    • School and district leaders should ensure that all school personnel understand student data privacy as a fundamental right, including in the context of self-harm monitoring programs. Districts should ensure that all educators know the requirements of FERPA, particularly its rules on sharing student information in health or safety emergencies.
    • To fully protect student privacy, schools should do more than simply comply with the law; they should also establish careful privacy protocols and practices to build trust with their stakeholders and communities. In particular, districts and schools should consider incorporating the Principles for School Safety, Privacy, and Equity into their safety policies. Written by 40 education, privacy, disability rights, and civil rights organizations, these ten principles are designed to protect students’ privacy, dignity, and right to an equal education. Several of the principles directly address issues relevant to mental health needs, such as the need to focus on prevention; to use monitoring programs that encourage evidence-based rather than knee-jerk responses; to use programs that include appropriate privacy protections; to provide mental health and behavioral services; and to avoid discriminatory practices and unnecessary involvement of law enforcement.

    Before implementing self-harm monitoring programs, school district leaders need to consider many privacy, equity, and practical concerns. The extent to which such technology can filter and monitor students’ online lives raises critical questions about students’ rights to privacy and how much schools should access students’ personal information. Scanning and monitoring all website activity, documents, searches, social media, emails, and online chats can make students feel excessively surveilled by their school, while inappropriately sharing and responding to student information collected from self-harm monitoring can put students’ well-being at risk. Individual districts and states can and should set their own policies of whether and how to monitor students. However, privacy guardrails must be drawn so students and families can be reassured that their rights will be protected. It is imperative that school districts approach any self-harm monitoring system holistically, taking into account the totality of harms that could arise from hastily adopting technology without well-developed implementation policies and the necessary accompanying school-based mental health resources.

    Key Questions School Districts Should Ask Monitoring Vendors Before Adopting a Monitoring Program

    If school and district leaders are considering adopting self-harm monitoring software, we recommend they ask the software vendors the following key questions:

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    Checklist for School Districts Developing Monitoring Plans and Policies

    Before adopting any monitoring technology, school officials and policymakers should ensure they have thoughtful policies surrounding the use of this technology that prevents unintended privacy violations, centers equity for all students, and clearly regulates the follow-up practices when students are flagged by the software.

    School officials should ensure their monitoring plan and associated mental health policies:

    • are based on tools and methods that have been independently validated and endorsed by mental health researchers and professionals, based on robust peer-reviewed and published medical evidence.
    • are based on a needs assessment that defines specific, clear goals for adopting a monitoring system and establishes the need that the monitoring system will fulfill.
    • are developed within the framework of existing school-based mental health resources and professionals (school psychologists, counselors, and social workers) that are able to provide support to any students who may be identified.
    • have been transparently developed in consultation with experts and community stakeholders, particularly families, students, and teachers.
    • have clear policies on which data are collected, who has access to them, how they will be used, and when they will be destroyed.
    • have clear policies on how to act upon data collected via student monitoring.
    • have clear policies on how school staff will review student information flagged by monitoring and who determines whether a flag is indicative of a true risk of self harm.
    • have clear follow-up policies on how school staff will respond to monitoring flags that they do deem indicative of a true risk of self harm and how they will respond to flagged information that they determine is innocuous.
      have clear policies on sharing data, particularly limitations on sharing with school resource officers, law enforcement, and administration beyond the school level.
    • make all of the policies easily available and accessible to students and parents in the Student Handbook/Code of Conduct and on the school website, and available in multiple languages.
    • are transparent and understandable to school staff, families, and students.
      include a robust training program for school officials responsible for handling sensitive student data.
    • have policies, including clear consequences, for individuals who violate data protection and sharing protocols.
    • do not stigmatize or reinforce biases against any groups of students based on race, religion, gender, disability status, sexual orientation, or other legally protected characteristics.
    • provide opportunities for recourse for students identified as a threat or at risk of self-harm, including access to the information used to identify them and an opportunity to dispute findings..
    • are compliant with all federal and state laws and protections, including FERPA, the ADA, Section 504, Title VI, and Title IX.
    • are reviewed regularly to verify that it protects student safety and to ensure that unnecessary surveillance is discontinued.
    • are reviewed prior to adoption and periodically after adoption to audit for civil rights and privacy rights compliance.

    Before implementing self-harm monitoring programs, school district leaders need to consider many privacy, equity, and practical concerns. The extent to which such technology can filter and monitor students’ online lives raises critical questions about students’ rights to privacy and how much schools should access students’ personal information. Scanning and monitoring all website activity, documents, searches, social media, emails, and online chats can make students feel excessively surveilled by their school, while inappropriately sharing and responding to student information collected from self-harm monitoring can put students’ well-being at risk. Individual districts and states can and should set their own policies of whether and how to monitor students. However, privacy guardrails must be drawn so students and families can be reassured that their rights will be protected. It is imperative that school districts approach any self-harm monitoring system holistically, taking into account the totality of harms that could arise from hastily adopting technology without well-developed implementation policies and the necessary accompanying school-based mental health resources.

    Conclusion

    In addition to understanding the privacy and equity risks, school and district leaders should also be aware of the many practical challenges involved in implementing self-harm monitoring. As discussed above, the efficacy of monitoring technologies for reducing self-harm has not been fully evaluated and the technologies have not been substantiated by mental health professionals or clinicians as an effective tool for addressing mental health crises. Beyond questions about the initial accuracy of identifying students in need of support, there are practical challenges to this identification actually leading to the students receiving support, including the widespread lack of qualified mental health personnel in schools. Flagging at-risk students can only be useful if effective follow-up plans and mental health resources are in place for the identified students.

    Additional Resources for Schools Developing Policies on Monitoring

    FPF Resources:
    Additional Resources: